Welcome

Ours is a community of those affected by an extremely debilitating chronic condition. It has been mislabeled as chronic fatigue syndrome (CFS). It is also referred to as myalgic encephalomyelitis (ME) as well as ME/CFS and CFS/ME.

In truth, it is not a single illness. Leading scientific researchers believe there may ultimately prove to be dozens of distinctly different conditions which are currently grouped together for lack of clear bio-markers which can be identified through testing.

The result of the current lack of knowledge on the disease is that it is most often misdiagnosed by all but a few physicians and improperly treated. Expert medical advise is so rare as to cause the estimated 28,000,000 sufferers around the world to "doctor" themselves with often devastating results.

Here then is a community YOU can turn to for information and guidance on fighting the disease which has so significantly impacted your life.

A community where YOU can share your stories, knowledge and insights with those who really understand what it means to have ME/CFS.

A community where YOU can identify those doctors and other practitioners who understand ME/CFS and are able to help alleviate its symptoms.

A community which will keep YOU up to date on national and local organizations and groups as well as those events which may better help YOU to fight the effects of ME/CFS.

A USER-COLLABORATIVE community whose structure and development YOU can directly influence.